Thursday, August 16, 2012


So true.

For so long I have hoped.  I have hoped for a psoriasis treatment that will work for me, that will give me my life back.  I have severe psoriasis and it keeps me from doing a lot of things I used to enjoy, including dressing comfortably for the seasons.  I wear long sleeves and pants year-round, even through miserable, hot Georgia summers.  This week, I started a new treatment called Stelara, and it seems to be the most promising yet.  I'll know in a few weeks if it will work for me.

I had my first injection yesterday, and Brian snapped this photo.

That's just a little snippet of my skin.  Those spots you see?  There are many, many more.  They cover me, make me miserable and I'm tired of them.  So, please do your thing, Stelara!

Even through failed treatment after failed treatment, I will not despair.  I will choose hope.

A couple years ago, I created this bust for Scrap n' Art.  It still represents my struggle with this disease.  August is National Psoriasis Awareness Month, so I wanted to share it.  Creating art is very therapeutic for me.

This bust represents "My Two Psides," meaning my two identities or sides of living with psoriasis.  There is a clear side, with smooth, beautiful skin.  I haven't seen that side of myself in well over a decade.  The other side, or "pside," represents the ugly, inflamed skin.  Red, burning, itching, scaling, flaking, miserable.  The two wings represent freedom and imprisonment.  One wing is free, ready to fly.  The other is tethered, tied and confined.  Held down by this disease.  The key represents my search for a treatment that will work for me.

It represents hope.  And I cling to it.


Margie said...

Sweetie, will be saying prayers that this new treatment will be THE one.
Your choice to be hopeful is the first step in a positive outcome...good vibes always seem to produce a good aura around you.
I LUV LUV that bust you did. It really didn't need explanation---it speaks on it's own.
I know you have been "long-suffering" w/this and we all are hopeful this will soon be done for you.
Know you are LOVED and our positive vibes are coming your way.

Anonymous said...

Honey,This has got to be the answer. We are all pulling for you and love you so much. The bust is a perfect example of all the problems you have. You did a great job on it.You have put up with this too long. We hope and pray this will work. Good luck and always know we are here and love you.

Ginger said...

This is gonna be THE ONE!!! I am so excited for you!!! You are the bravest girl I have ever known and I'm so blessed that you're mine! I love you!!!


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