August is
Psoriasis Awareness Month. I have had
psoriasis since I was 18 years old. It started with a nickel-size patch on my scalp, and, over the years, has spread to cover most of my body. It's painful, debilitating and affects every aspect of my daily life. I also have
psoriatic arthritis. This is also a very painful disease. When I'm not flaring up, the pain and discomfort are tolerable, but I still have to deal with the way it looks. I do this by staying covered year-round, even during hot Georgia summers. I have recently started wearing short sleeves out in public from time to time, so I am making progress.
People don't understand what it is, or they think it's contagious (it's not). They stare and ask rude questions. This makes it even more important to raise awareness. People need to know what this disease is. The general public needs to be able to look at a psoriatic's skin and just think, "oh, that's just psoriasis" like it's no big deal. Because the social stigma that comes along with it makes psoriasis that much harder on a person suffering from it. If you see us wearing short sleeves and our arms are pink and inflamed, don't bring attention to it. And certainly, don't be afraid of it. You can't catch it. It won't hurt you. Treat us no differently than you would any person. Think of our lesions as unwanted tattoos in which we had no say. People with tattoos are accepted in society; why can't psoriatics be? We should be, and it's time to take our freedom back.
I want to raise awareness and get more people involved in helping to find a cure. It's as easy as
writing your legislators and telling your story about psoriasis. You may only know me or someone else who has it. You don't have to have the disease yourself to get involved and raise awareness. Even if we can't find a cure, we can at least educate people so they know what it is. When people are educated, they are empowered. One person at a time, we can make a difference in the lives of psoriatics everywhere. At the very least, we can wear our short sleeves out in public without giving it a second thought and without the fear of embarrassment.
In the last issue of
Scrap n' Art e-zine, I created a bust for psoriasis. It was a project exclusively designed for our July/August issue, and was an artistic way for me to tell my story. Here's a picture of it (click the picture to view larger):
There are several symbols I incorporated into this project. I can share a few with you here. First, the bust is split visually down the middle to symbolize a beautiful, disease-free side and an inflamed, psoriatic side. I used pieces of cardstock, glued on one-by-one, along with red and pink Glimmer Mists to represent the psoriatic side. The wings are there, one tethered and one free, to represent how having psoriasis and psoriatic arthritis is like being held back and imprisoned. The key represents my search for an effective treatment or cure. Those are just a few details. (More are in the issue!)
I got special permission from our Editorial Director,
Candy Rosenberg (thanks, Candy!) to share it with you here and now. (Usually, there is a two-issue wait period to share Scrap n' Art exclusive projects publicly.) There are more pictures, close-ups and details about the bust in the July/August issue--to read more about it,
subscribe here!
Thanks for checking out my post about psoriasis and looking at my project. And thanks for
your help in raising awareness about this horrible disease!
Posts
